It is important to us that you know that any information you share with us is safely stored and responsibly shared

The information we collect is completely confidential and the data is stored securely and only released to researchers for studies approved by the SDCRN. 
The storage of your data has been approved through an Ethics Committee and has limited access so that nobody can access your information without permission from the SDCRN staff. 
The register is for purposes of research and is not part of any treatment. Your agreement to take part in the register is purely voluntarily and does not affect any care or treatment you receive from the National Health Service.